Privacy policy

This privacy policy tells you how and why we collect and use your data. If you have any questions or concerns, please email or write to us and we will do our best to answer any questions you might have.

Who we are

The website is owned and operated by Brain Research UK, a working name of Brain Research Trust (“us” or “we”). We are a charity registered in England and Wales with charity number 1137560, and a company registered in England and Wales with company number 7345516. Our registered office is Brain Research UK, 4th Floor, 5 Chancery Lane, London  WC2A 1LG.

There are hundreds of neurological conditions. We fund the best research to discover the causes, develop new treatments and improve the lives of those affected.

Our approach to privacy

We take your right to privacy very seriously and respect any personal information you share with us and endeavour to keep it safe, whatever your relationship is with us.

Importantly we want you to know that we will not sell or rent your data to third parties.

This privacy policy is intended to give you an understanding of how and why we use the information you give us.

By using our website or providing us with any personal information, including sensitive information (such as information about your health) you agree to your personal information being used and stored in the manner set out in this policy.

We may update this policy from time to time without notice to you, so please check it regularly.

How we collect personal information from you

There are a number of ways you might share your personal information with us including;

  1. when you submit  personal data through a form on our website
  2. when you make a donation to Brain Research UK;
  3. if you volunteer for Brain Research UK;
  4. if you take part in a challenge event or otherwise fundraise on our behalf;
  5. if you apply for funding from us;
  6. when you place an order in our online shop; or
  7. you contact us with enquiries, correspond with us (including corresponding with us on behalf of a business) or become involved with us in another way (including via social media such as Twitter or Facebook).

Information we might receive from other sources

Your information may be shared with us by third party organisations, for example fundraising sites, like Virgin Money Giving and Just Giving. They will do so based on their own policies on data protection and privacy.

It’s a good idea to check their privacy policy when you provide your information to understand fully how they will process your data.

On occasion, we may also collect information (such as your telephone number and address) from the public domain, either directly or from third parties.

What type of information we might collect and process about you

The personal information we might collect includes;

  1. your name, address, email address and other contact information (including details of your social media accounts/profiles)
  2. information you enter onto our website
  3. records of your correspondence with us, if you have contacted us
  4. information about your employment (for example if you are a workplace giver)
  5. details of your contact with us, including its frequency
  6. financial information
  7. details of your visit to the site including your IP address

Sometimes supporters are kind enough to share their stories about why they support Brain Research UK. When telling us about your story, you may provide us with sensitive personal information, for example information about your health. Except where permitted by law, we will never collect sensitive personal data about you without your consent.

How we use your information

We may use your information;

  1. to provide you with the service or information you have asked for
  2. to administer you donation, support your fundraising, process Gift Aid
  3. to provide you with information about us and our fundraising campaigns, our services and any other information, products or services that we provide or provide access to
  4. to comply with applicable laws and regulations, and requests from statutory agencies
  5. for our internal administrative purposes, including to administer funding applications received
  6. to notify you about changes to our services
  7. to ensure that content from our site is presented in the most effective manner for you and for your computer
  8. to process job applications
  9. to seek your view

Consenting to marketing                    

We will only contact you via SMS and email where you have specifically given us consent to do so. For the purposes of sending marketing through the post and making marketing phone calls we may do so under something called legitimate interest and where our legitimate interest does not outweigh your rights and freedoms. In the instances you receive these calls and mailings you will be given the opportunity to opt out of this activity and you can also opt out of this at anytime by contacting us using the details below.

Also, if you ever want to change the way you hear from us or update your contact details then please call us on 020 7404 9982, email or by writing to us at:

Brain Research UK
4th Floor
5 Chancery Lane
London  WC2A 1LG


We may also analyse your personal information to create a profile of your interests and preferences so that we can contact you with information relevant to you. We may make use of additional information about you, including geo-demographic information and measures of affluence, when it is available from external sources to help us do this effectively. This helps us understand the background of the people who support us and helps us to make appropriate requests for gifts to supporters who may be willing and able to give more than they already do and/or leave us a gift in their will.

We may use third party suppliers to undertake these activities on our behalf and share your data with them to the extent required.

Your rights


You can withdraw your consent at any time. If, at any time you do not wish to receive further information about us and our services (including fundraising materials), or you wish to change your contact details or preferences, please let us know by contacting us using the details below.

If you request to receive no further contact from us, we will keep some basic information in order to avoid sending you unwanted materials in the future, and to ensure that we do not accidentally store details for the same person multiple times.

Also, it is worth noting that if you opt out and then later opt back in your most recent instruction will take precedence.

You also have the rights to:

  1. request a copy of the information we hold about you;
  2. update or amend the information we hold about you if it is wrong;
  3. change your communication preferences at any time;
  4. ask us to remove your personal information from our records;
  5. object to the processing of your information for marketing purposes or;
  6. raise a concern or complaint about the way is being used

If you would like to exercise any of these rights – please send us a request by email to or by writing to us at;

Brain Research UK, BWB Charity Hub, 10 Queen Street Place, London EC4R 1BE

Where your data is held

All information you provide to us is stored securely and treated with care and respect. Any payment transactions will be encrypted using SSL technology.

When you use a form on our website, your submitted details are also processed and stored on the servers of our hosting partner Webflow ( Your information is saved in our account, and we are able to control the data and respond to your requests as described above.

When you place an order via the online shop on our website, your submitted details are also processed and stored on the servers of our hosting partner Ecwid ( and Your information is saved in our account, and we are able to control the data and respond to your requests as described above.

The data that we collect from you may be transferred to, and stored at, a destination outside the European Economic Area (“EEA”) such as the United States. It may also be processed by persons operating outside the EEA. If we do send your personal data outside the EEA we will take reasonable steps to ensure that the recipient implements appropriate measures to protect your information. By submitting your details you agree to this transfer.

Unfortunately, the transmission of information via the internet is not completely secure. Although we will do our best to protect your personal data, we cannot guarantee the security of your data transmitted to our site; any transmission is at your own risk. Once we have received your information, we will use strict procedures and security features to try to prevent unauthorised access.

Who has access to your data

As mentioned previously – we won’t sell or rent your data to third parties for them to use for their own purposes.

Our staff and consultants may have access to your data and sometimes we may pass your data to third parties when they are working on our behalf. For example when we send out mailings we need to send names and address to the printers so they can print the mailing and post them out. However, we will only provide those companies with the information they need to deliver the relevant service, and we make sure that your data is treated with the same level of care as if we were handling it directly.

We may disclose your personal information to third parties if we are under a duty to disclose or share your personal data in order to comply with any legal obligation, or in order to enforce or apply any agreements, or to protect the rights, property or safety of Brain Research UK, or others.

Changes to this policy

This policy was last updated on 01 December 2019.

We may make changes to this privacy policy from time to time, so we encourage you to check it on occasion. By continuing to use our website you will be deemed to have accepted those changes.